This is a story I did for Kidney Health Australia. Click to have a squizzy: Maria’s Story
This is a radio interview I did for Triple J’s current affair program HACK: http://www.abc.net.au/triplej/hack/stories/s3714952.htm
As I sit at my favourite beach and watch my dog play with her foster brother, I am facing my unknown future. It will be three weeks this Monday that I had my cross matching done with my girlfriend, sister and husband. Who will it be? Will it be anyone? Then what? How will I have have the strength to keep strong? Will I get weaker the longer I stay on dialysis? Will I have to go on that dreaded list that I waited 6 years on the last time and never got ‘the call’?
For now my life is pretty stable. The main thing this is I have energy and i feel good. I’ve finally started the automatic peritaneal dialysis machine (APD) which means no more daily 5 bag changes a day. I just plug myself in at night and by the morning, I’m done. Amazing. Although I still feel like a robot, recharging myself while I sleep, I’m so so grateful I have my days back. Free to be a beach bum and hang out with my friends. He he, just how I like it. I still work and have responsibilities, but it feels pretty good on my days off. I feel like a teenager again. Freedom. And I know I deserve it.
I fill my days with baking, fishing, snorkelling, hanging out with my mates and their babies, walking, doing yoga and general chilling. Oh how I wish this was my life with a kidney. Sometimes I forget that I need one and then I get a glimpse of my tube and remember what I am going through. I’m scared. But if I wasn’t, I really would be a robot. I have hope, always will. I try and keep myself busy mentally and physically so I don’t allow myself to get down. I lean on my husband for emotional support and thank god I have him. Every now and again i ask him if I am going to be alright. He answers, ‘oh course babe’, and I believe him. The rain is coming so I better go before I get wet. I hate winter.